These influencers with endometriosis are our ultimate support follows
You don’t usually find these accounts on a good day.
It’s more likely you’re mid-scroll, mid-search, or somewhere between “is this normal?” and “why does no one talk about this properly?”
The average time to an endo diagnosis as of now still sits around 10 years. That’s 10 years of symptoms being minimised, misunderstood, or dismissed entirely, despite affecting an estimated 1 in 10 women and people with ovaries.
You might be saving posts you don’t fully understand yet, or trying to explain a symptom that never seems to land quite right with someone else. And then, every so often, you come across someone who just… gets it.
From symptom validation to practical tips, to just feeling seen on a tough day, these creators are top of our personal recs list.
8 influencers with endometriosis (add these to your follow list)
Here’s the feed you wish you’d found sooner, that guarantees you the kind of content you come back to, save, and rely on when you need it most.
When you need someone to put it into words…
Emma Maxwell (@endometriosisem)
Follow for: the posts you send to someone else when you don’t have the energy to explain your symptoms again
If you’ve ever struggled to articulate what’s going on in your body, you’ll relate. Hard.
Emma’s content has a way of turning complex, often dismissed symptoms into something clear and recognisable — which can be a huge relief when you’ve been trying to find the right words yourself.
When you’re looking for honesty…
Sapphia Cousins (@sapphiacousins)
Instagram | TikTok
Follow for: real-life honesty, humour, and the kind of posts that say what you’ve been thinking but haven’t said out loud
Sapphia brings a grounded, unfiltered take on living with endometriosis, often balancing the frustrating parts with humour where she can. Her content doesn’t smooth things over, which is exactly why it hits just right.
When you want helpful tips to feel that little bit better…
Amy-Jane (@growwithendo)
Follow for: gentle, practical ways to feel a bit more in control
Amy-Jane brings a grounded mix of lived experience and self-development, helping you think about what support can look like day-to-day, not just in theory.
Trying to navigate endo while still building a life around it? Hit follow.
When you’re navigating a sister diagnosis…
Gabz (@allthingsgabz)
Follow for: honest conversations about overlapping conditions
If your experience doesn’t fit neatly into one label, or you’re also struggling with another chronic condition like adenomyosis alongside endometriosis, Gabz is your gal.
Covering endometriosis and adenomyosis, she speaks to the complexity that often gets missed, and makes it feel far less isolating in the process.
When you’re also in midlife or menopause…
Sahir Ahmed-Evans (@saeempoweroaching)
Follow for: support through hormonal transitions and the shifting reality of midlife with chronic conditions
Sahir’s content speaks to the intersection between endometriosis, perimenopause, and menopause, and how those experiences can overlap in ways that aren’t often discussed together.
She’s got a super strong focus on empowerment, self-advocacy, and understanding what your body needs through change.
When you’re here for both awareness and advocacy…
Robyn Hoskin (@robyn.hoskin)
Follow for: a wider lens on what needs to change
Raise your hand if you’ve ever left an appointment thinking, well this could be better. We can imagine that’s most of you.
Robyn blends personal experience with a bigger-picture view, helping spotlight not just what living with endometriosis feels like, but why better understanding really matters.
When you’re having a hard day…
Sophie Lucy Seger (@sophielucy.seger)
Follow for: calm, honest reflections on living with endo
If you’re carrying the emotional weight of it all a little extra much at the moment, you’ll relate.
Sophie’s content gently opens up the side of endometriosis that doesn’t always get airtime. The feelings, the fatigue and the in-between lifestyle moments, it’s all on her page.
When you’re chronically ill…
Talia (@mrs.wandrum)
Instagram | TikTok
Follow for: relatable, day-in-the-life honesty that reflects long-term chronic illness realities
Talia shares the ongoing, everyday reality of chronic illness in a way that feels very lived-in and real.
It’s not all the big moments, but the smaller ones too, the planning, pacing, adapting, and everything in between. And with a really incredible dash of humour, may we add.
You’re not alone
Endometriosis is still so widely misunderstood, and for many people, getting clear answers can take time. In that gap, content like this plays a quiet but important role.
It helps you recognise patterns in your own experience, find language for symptoms that are hard to describe, and feel more confident asking questions when it comes to your care.
Just as importantly, it reminds you that what you’re experiencing is real, even if it hasn’t always been recognised as such.
Are we missing someone from our list? You know what to do. Pop us a DM over on Instagram or TikTok.
Need more influencers?
The creators above are shaping conversations in a way that feels grounded, honest and genuinely useful, and that’s exactly where things are heading. It’s also why we’ve been building something to support more of these connections behind the scenes.
Are you a brand, creator or influencer working in the (peri)menopause, wellbeing, fertility, pregnancy, family-building and parenting space? We’ve just launched the first of its kind Influencer Collective, powered by us here at TRB. It’s a brand new platform, built to support easier connection and spark important conversations.
